Past Event
Jun
AusACPDM Listening and Sharing Session: June 2024
Congenital Cytomegalovirus
Join us in our free listening and sharing session.
26th June 2024, 4:30pm – 5:30pm Australian Eastern Savings time
Topic information:
Did you know that June is CMV Awareness Month? So what better time to learn about this common virus, outcomes for children born with CMV, clinical outcomes for children with congenital CMV disease and opportunities for prevention.
Most importantly of all, during this session you will hear from families with lived experience describing their journeys and what family centred care has meant for them.
Join us for this interactive AusACPDM Listening and Sharing session which will be of interest to clinicians, researchers, students and people with lived experience.
Speakers: Hayley Smithers-Sheedy, Kath Swinburn and Pam Rogers
The session will be facilitated by: Hayley Smithers-Sheedy
Date: 26 June - 26 June
Location: Zoom, register for link.
Register now More detailsNov
IAACD Global Professional Education Committee Global Listening and Sharing Sessions 2024
The full schedule and links to each session are now out for the 2024 IAACD Global Listening and Sharing Sessions! The theme this year is “Families: Who cares for them”.
Families have an important role in supporting family members living with a childhood onset disability. Do we fully understand the needs of families and how we can support them? Join us to listen and share stories from family members from around the world and promote a community who care for families. Different sessions have been scheduled across the world, and anyone is welcome to join.
Download the full schedule with links to each sesssion: Final Global Listening and sharing timetable 23.11.2024
Check out the sessions below from our geographical region:
| GMT | Country | Country time | Topic title and format | Language | Zoom/Teams link |
| 12am | Australia | 10am ADST | “Behind the scenes: Perspectives of family support needs from parents of children living with disability” Panel discussion | English | https://mcri.zoom.us/j/65896132734?pwd=DQFtdvLus94kiLybODnyCCZqwTtS0a.1 |
| 630am | India | 12noon IST | “Families: Who cares for them?” Discussion | English | https://us02web.zoom.us/j/81154278880?pwd=d36qHiTKbyquVA26TSzfW4U7nNw9 0J.1 Meeting ID: 811 5427 8880 Passcode: 449892 |
| 7am | Sri Lanka | 1230pm | “Sri Lankan Families Supporting Children with Disabilities.” Interview discussion and personal reflections | English and Sinhalese | https://us02web.zoom.us/j/88462195426?pwd=oORRQXOHcVVrwqFilC0zg87CL1LVKC.1 |
| 730am | New Zealand | 730pm | “Reflections on Life, Loss and Therapy Responsibilities” Parents will share their reflections followed by open chat | English | https://us06web.zoom.us/j/83676016311?pwd=8GRJRi1xgQL3IbK6dSLeB4ZjQOPeYG.1
Meeting ID: 836 7601 6311 Passcode: 505656 |
Date: 29 November - 29 November
Location: Virtual, Links to register for each session are available in the attached flyer and linked webpage
Register nowMay
AusACPDM Listening and Sharing session: May 2024
Cerebral Palsy Global Clinical Trials Network
Join us in our free listening and sharing session.
Wednesday 15th May 2024, 4:30pm – 5:30pm Australian Eastern Standard Time
Topic information: This interactive AusACPDM Listening and Sharing session will be about:
The establishment of the Cerebral Palsy Global Clinical Trials Network, generously funded by the Elsass Foundation and Cerebral Palsy Alliance. This session will illustrate how through innovation, global collaboration and partnerships with people with cerebral palsy (CP), we aim to overcome the limitations of regular clinical trials for CP. The Network aims to improve outcomes and quality of life for those living with CP, via faster clinical trials using innovative adaptive designs, and faster translation of new treatments into usual care. We will delve into the rationale, current CP field agreement for the Network, development stages, and provide an update on the Network’s first adaptive prototype study.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Speakers: Presenters include: Adjunct Associate Professor Maria McNamara, Jenna Mitchell, Karin Lind, Professor Iona Novak
The session will be facilitated by: Kirsty Stewart
Date: 15 May - 15 May
Location: Zoom, Register for the link
Register now More detailsApr
AusACPDM Listening and Sharing Session: April 2024
Weight No More
Join us in our free listening and sharing session.
24th April 2024, 4:30pm – 5:30pm Australian Eastern Standard Time
Topic information: This presentation provides a talk and discussion on The Healthy Kids Club. A multidisciplinary service for obesity and Type 2 Diabetes. A Trans-disciplinary model of working focusing on health education and lifestyle change.
This session will be of interest to clinicians, researchers, students and people with lived experiences.
Speakers: Stephanie Brain – Physiotherapist
The session will be facilitated by: Meredith Wynter
Date: 24 April - 24 April
Location: Zoom, register for link.
Register now More detailsMar
AusACPDM Listening and Sharing session: March 2024
“Conveying Life, Laughter, Logistics and Leg Length” Presenting Case Studies in 2024
Join us in our free listening and sharing session.
27th March 2024, 4:30pm – 5:30pm Australian Eastern Daylight Savings time
Topic information: This presentation provides a talk and discussion on presenting case studies respectfully, particularly focusing on the experiences of individuals with disabilities in different settings. Targeted at clinicians, academics, and allied health professionals, it explores the power of personal stories, the impact of language, and the process of building contemporary case studies. Through examples and reflections, it emphasizes the importance of conveying both success stories and challenging experiences with sensitivity and ethics.
Speakers: Amy Hogan, Sara Sheehan, Katarina Ostojic, Adrienne Harvey
The session will be facilitated by: Sarah McIntyre
Date: 27 March - 27 March
Location: Zoom, Register for the link
Register now More detailsJul
AusACPDM Pre-Conference Workshops – 31st July
Infinite Horizons: A Workshop for Everyone – Babies to Adults with Cerebral Palsy, Real People to AI Advancements
Wednesday 31st July, 8:30am – 1pm
Presenters:
- Australians with lived experience
- CP-ACHIEVE Team: Reddihough, Imms, Wallen, Morgan, Coghill, Shields
- DRIVE CP team: Novak, Boyd, Sakzewski, Bradford, Fahey, Morgan, Spittle
This workshop will provide participants with updates from the two current Centres for Research Excellence in Cerebral Palsy – CP-Achieve and DRIVE CP. Topics covered include:
- Powerful partnering with people with CP and family members in research (the real people)
- Artificial intelligence – diagnostic opportunities and challenges (the AI)
- Hot off the press – a selection of new CP research findings in brief.
- New studies – what’s coming your way and ways to get involved.
Working cross culturally in maternal and child health: walking the walk, not just talking the talk
Wednesday 31st July, 8:30am – 1pm
Presenters:
- LEAP Team: Dr Kath Benfer, Ms Carly Luke, Ms Leeann Mick-Ramsamy, Ms Jesse-Lee Richards, Ms Martika Takken, Ms Ellena Oakes
- Strong Families Cohort: A/Prof Kym Rae, Ms Davina Smith, Prof Sandra Eades
- ENVISAGE First Peoples Team: Prof Laura Miller, Ms Rebecca Tamaariki, Prof Christine Imms
- A/Prof Sue Wolfenden
This workshop draws on the experiences of teams with extensive experience in First Nations and refugee/ migrant maternal and child health programs, from both service-delivery and research perspectives. A panel discussion will elucidate a toolkit for competent cross-cultural practice, including use of engaging words and effective communication, the role of culture in health beliefs and decision-making, exploring clinician attitudes and assumptions, considerations for culturally responsive models of care, and ensuring cultural safety.
Date: 31 July - 31 July
Location: Cairns
Register nowJul
AusACPDM Pre-Conference Workshops – 30th July
Implementing early intervention for infants (0-2 years) at risk of adverse neurodevelopmental outcomes
Tuesday 30th July, 8:30am – 4:30pm
Presenters: Prof Roslyn Boyd, Prof Stacey Dusing, Dr Sue Greaves, Prof Andrea Guzzetta, Dr Cathy Morgan, Prof Iona Novak, Prof Alicia Spittle
This workshop is aimed at clinicians (allied health and medical) and parents of young children at high risk of adverse neurodevelopmental outcomes. It will focus on the practical implementation of early intervention to improve a range of neurodevelopmental outcomes for at risk infants born preterm and/or with cerebral palsy or Cerebral Visual Impairment (CVI). The workshop will focus on key principles informing early intervention and the latest evidence-based trials conducted with infants with cerebral palsy and/or born preterm. Throughout the workshop there will be a strong focus on practical strategies using illustrative case studies and the use of assessments to inform the choice of intervention strategies that are most appropriate to individualise therapy.
The four targeted early intervention areas will include:
- Goals Activity Motor and Environmental Enrichment (GAME) for all infants at high risk of CP;
- Two upper limb therapy approaches for infants with or at high risk of unilateral CP (modified constraint-induced movement therapy – Baby-CIMT and bimanual therapy -Baby-BIM) in REACH;
- Early intervention for preterm infants – SPEEDI and TEDI-PREM;
- Assessment and intervention strategies for infants with Cerebral Visual Impairment (VISIBLE).
Promoting Wellbeing for children, young people and their families: A practical approach
Tuesday 30th July, 8:30am – 4:30pm
Presenters: Dr Giuliana Antolivich, Dr Jasneek Chawla, Dr Sue McCabe, Jacqui Barfoot, Grace Kirby, Assoc Prof Adrienne Harvey, Amy Hogan, Georgie Henry, Hannah Diviney
This workshop will explore and promote the importance of wellbeing for children and their families from early childhood through to adulthood. It will provide research updates and an evidence-based practice approach exploring pain, fatigue and sleep. The importance of good physical health, participation in physical activity and good mental health will be addressed. Participants will hear from panellists with lived experience and research and clinical experts in the fields of sleep, pain, fatigue, wellbeing and participation across childhood disability. The workshop aims to provide clinicians with a range of tips, tricks and tools that can be implemented in clinical practice.
Date: 30 July - 30 July
Location: Cairns
Register nowJul
Prechtl’s Method of the Qualitative Assessment of General Movements: Basic and Advanced Courses – Cairns 2024
This three day course provides an introduction into Prechtl’s Method on the Qualitative Assessment of General Movements in young infants. This new assessment method has shown its merit for the prenatal and postnatal evaluation of the integrity of the nervous system. Compelling evidence is now available that qualitative assessment of General Movements (GMs) at a very early age is the best predictor for cerebral palsy. This method has become a potent supplement to the traditional kind of neurological examination.
These courses will be held just prior to the Australasian Academy of Cerebral Palsy and Developmental Medicine Conference in Cairns (31 July – 3 August 2024). Take the opportunity to join the Pre-conference workshops being held on the Tuesday the 30th February (registrations required).
- Implementing early intervention for infants (0-2 years) at risk of adverse neurodevelopmental outcomes
- Promoting Wellbeing for children, young people and their families: A practical approach
Who should attend?
Medical specialists, neonatologists, physiotherapists, occupational therapists, registered nurses, and other professionals in the field of infant neurology
Date: 27 July - 29 July
Location: Cairns
Register now More detailsFeb
AusACPDM Listening and Sharing session: Feb 27th 2024
Dipping your toes into research
Join us in our free listening and sharing session.
Tuesday 27th Febueray: 4.30pm (AEST), 5.30pm (AEDT)
This interactive AusACPDM Listening and Sharing session will be about what it’s like to dip your toes into research, without immediately making the jump to a formal research degree like a PhD. We will hear from four clinicians who have all engaged in research recently via different avenues. This session will include a discussion on how to find opportunities to get involved in research, and what it’s like to be involved in research while working clinically. We will also explore the opportunities that exist after you get that first taste of research.
This session will be of interest to clinicians, students and people with lived experience who are interested in being involved in research, or researchers who would like to partner with these people.
Presenters include: Karen Graham, Ishani Perera, Joseph Vida & Lizzy Barnes Keoghan
The session will be facilitated by: Dr Georgina Clutterbuck
Date: 27 February - 27 February
Location: Zoom., register for the link
Register now More details