Past Event
Aug
AusACPDM Listening and Sharing session: 31st August 2022
First Nations cultural adaptation of the LEAP-CP early Screening Program
31st August 4:30pm Australian EST
Join us in our free listening and sharing session.
Topic information: Early screening programs can identify infants who are ‘on track’ with their development and those who require extra support to grow strong. The LEAP-CP early screening study is a culturally adapted program embedded in hospital services in North QLD and aims to offer First Nations babies and families early movement and learning checks over the first year of life to support infant development. The cultural adaptation and modification of the screening program utilises a participatory action research model involving community consultation and engagement, targeting key components of cultural safety and sensitivity, consultation and co-design, capacity building and sustainability. This session may be of interest to clinicians and researches working with Aboriginal and Torres Strait Islander infants and families.
Speakers: Leanne Mick-Ramsamy, Carly Luke
The session will be facilitated by: Professor Ros Boyd
Date: 31 August - 31 August
Location: Zoom, please register for the link
Register now More detailsJul
AusACPDM Listening and Sharing session: 27th July 2022
Implementing and evaluating PROMs and PREMs in practice: challenges, opportunities and future directions
27th June 4:00pm Australian EST
Join us in our free listening and sharing session.
Topic information: This presentation will give an overview of evidence regarding effectiveness and implementation of PROMs and PREMs in routine practice. The ways in which feedback of information from PROMs and PREMs to clinical teams might work to improve care will be discussed. Also covered will be: how to choose an appropriate PROM, strategies to assist in using PROMs and PREMs in practice, how to evaluate the use of PROMs and PREMs in practice, and alternative methods of engaging patients and families to monitor outcomes.
This presentation will be of interest to those already using PROMs and PREMs in practice or planning to do this. It will also be of interest to researchers wishing to evaluate the effectiveness or implementation of these measures in practice.
The presentation will be relevant to all health professionals regardless of discipline and will focus on paediatric health care.
Speakers: Dr Zephanie Tyack (Senior Research Fellow in Implementation Science, AusHSI, QUT)
The session will be facilitated by: Associate Professor Leanne Sakzewski
Date: 27 July - 27 July
Location: Zoom, Register for link
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AusACPDM Listening and Sharing session: 29th June 2022
Meet the Editor of Developmental Medicine & Child Neurology
29th June 4:30pm Australian EST
Join us in our free listening and sharing session.
Topic information: Following the successful “Ask me anything” session with Professor Bernard Dan at our AusACPDM/IAACD Conference, we have invited him back for another session where participants can ask anything about publishing. We will discuss how to get your work published, how to be a good peer-reviewer and many more hot topics in publishing.
Speakers: Professor Bernard Dan
The session will be facilitated by: Professor Alicia Spittle
Date: 29 June - 29 June
Location: Zoom, Register for link
Register now More detailsMay
Respiratory Illness in Cerebral Palsy: It’s everybody’s business
Join us in our free listening and sharing session.
Wednesday 25th May, 2022 4.30pm Australian EST
Topic information: Respiratory illness remains the biggest contributor to deaths in young people with CP. We will present the development of the consensus statement for the assessment, prevention and treatment of respiratory illness in children with CP. This talk will highlight the risk factors for respiratory illness and everybody’s roles in achieving best lung health for children with CP.
Speakers: Dr Noula Gibson, PhD, Research Coordinator Physiotherapist, Perth Children’s Hospital
The session will be facilitated by: Dr Rachael Marpole, Advanced Respiratory Trainee, Perth Children’s Hospital and PI for the REducing ReSPiratory Admission in CP- A Feasibility Controlled Trial (RESP-ACT)
Date: 25 May - 25 May
Location: Zoom, please register for link
Register now More detailsApr
AusACPDM Listening and Sharing session: 27th April 2022
Dispatches From An Information Dessert: Framing CP As Adults
27th April 4:30pm Australian EST
Join us in our free listening and sharing session.
Topic information: Cerebral Palsy is a complex condition to live with, made more so by the fact that it encompasses such a broad spectrum of experiences & realities. Adults living with CP become responsible (by default) for articulating and advocating for themselves within systems not built for continual experience of childhood-onset disabilities. Hannah and Amy bring together both their personal experiences and professional interests to discuss the key elements of this topic.
Speakers: Amy Hogan and Hannah Diviney
The session will be facilitated by: Petra Karlsson and Sarah McIntyre
Date: 27 April - 27 April
Location: Zoom, please register for link
Register now More detailsMar
AusACPDM Listening and Sharing session
“Running sports-focussed interventions in different contexts. Sports Stars in the bush, Brazil and babies.”
Join us in our free listening and sharing session.
Wednesday 30th March 2022 4.30pm to 5.00pm Australian DST/ 3.30pm Australian EST
Topic information:
Sports Stars is a practitioner-led, peer-group sports intervention that aims to prepare children for transition out of health-focussed interventions, and into participation in community sport. In this session, Georgina will share her experiences and learnings from adapting Sports Stars so that it can be run in different geographical and cultural contexts, including rural/remote Australia and Brazil, and in different population groups, including for children with CP, Autism or JIA, young children referred for gross motor delay, and groups with children with a variety of disabilities. This session will include practical information on the role of Physical Literacy in meaningful sports participation.
This session would be enjoyed by people with an interest in sports participation of people with disabilities including clinicians, researchers and people with disabilities and their families.
Speakers: Dr Georgina Clutterbuck
The session will be facilitated by: Dr Megan Auld
Date: 30 March - 30 March
Location: Zoom, please register for link
Register now More detailsNov
AusACPDM Listening and Sharing session
“Assessment of dyskinesia in CP: then and now”
Join us in our free listening and sharing session.
Wednesday 24th November 2021, 4.30pm to 5.00pm Australian DST
Topic information: This session will provide an overview of recommended assessment practices for children and young people with cerebral palsy and dyskinesia, including measuring the impact of dyskinesia on function. We will present the newly published tool: The Dyskinetic Cerebral Palsy Functional Impact Scale (D-FIS). This session is targeted towards physiotherapists, occupational therapists and physicians but will also be of interest to other health professionals, researchers as well as people with cerebral palsy and parents of children with cerebral palsy.
Speakers: Kirsty Stewart and Adrienne Harvey
The session will be facilitated by: Adrienne Harvey
Date: 24 November - 24 November
Location: Zoom, please register for link
Register now More detailsOct
AusACPDM Listening and Sharing session
Supporting children and adults with disabilities in low-middle-income countries during the COVID pandemic
Join us in our free listening and sharing session.
Wednesday 27th October 2021 at 4.30pm Australian DST
Topic information: Come together to discuss the innovative strategies being used to support families of children and adults with disabilities in Bangladesh and Sri Lanka during the COVID pandemic.
Speakers:
Ms Israt Jahan (Program Manager, CSF Global) will be speaking about how the team at CSF and implementing community-based rehabilitation and research programs during the COVID pandemic.
Prof Samanmali Sumanasena (Hon Consultant Paediatrician North Colombo Teaching Hospital and University of Kelaniya) will be speaking about the impact of the COVID pandemic on health and disability services in Sri Lanka.
Mr Gopi Kitnasamy (Head of Rehabilitation Services) will be talking about the MJF Charitable Foundation’s use of the disABILITY Screening App to provide telehealth services to children and adults with disabilities.
The session will be facilitated by: Dr Hayley Smithers-Sheedy
Date: 27 October - 27 October
Location: Zoom, please register for link
Register now More detailsOct
6th Oct: World CP Day 24hr Listening and Sharing session
What is this 24-hour session about?
By focusing only on diagnosis, we may be missing vital information which we ordinarily think about as clinicians of any sort when we are asked to work with a child and families. We have a long tradition of thinking diagnostically and functionally (or categorically). The idea of focusing just on diagnosis or function is clearly a limitation and we believe we need to expand our thinking.
This 24-hour session provides an opportunity for health professionals working in the field of childhood disability, parents and experiential experts across the globe to come together and ask one another “How can we best benefit from combining two approaches (Functional and Diagnosis thinking)? What are we missing?” “(How) can we integrate and expand both approaches in order to cover topics like bodily functions, mental wellbeing, meaning, quality of life, participating, daily functioning, psychological, social, pedagogical and spiritual aspects?”
Contact IAACD to join the Listening and Sharing Group email
Download a document with links to other sessions around the world here.
Register now for the AusACPDM session (registration link below)
Wednesday 6th October 2021 at 4.30pm Australian EST
Date: 6 October - 6 November
Location: Zoom, please register for links to each hour session
Register now