Past Event

27
Jul

AusACPDM Listening and Sharing session: 27th July 2022

Implementing and evaluating PROMs and PREMs in practice: challenges, opportunities and future directions

27th June 4:00pm Australian EST

Join us in our free listening and sharing session.

Topic information: This presentation will give an overview of evidence regarding effectiveness and implementation of PROMs and PREMs in routine practice. The ways in which feedback of information from PROMs and PREMs to clinical teams might work to improve care will be discussed. Also covered will be: how to choose an appropriate PROM, strategies to assist in using PROMs and PREMs in practice, how to evaluate the use of PROMs and PREMs in practice, and alternative methods of engaging patients and families to monitor outcomes.

This presentation will be of interest to those already using PROMs and PREMs in practice or planning to do this. It will also be of interest to researchers wishing to evaluate the effectiveness or implementation of these measures in practice.

The presentation will be relevant to all health professionals regardless of discipline and will focus on paediatric health care.

Speakers: Dr Zephanie Tyack (Senior Research Fellow in Implementation Science, AusHSI, QUT)

The session will be facilitated by: Associate Professor Leanne Sakzewski

Date: 27 July - 27 July

Location: Zoom, Register for link

Register now More details
29
Jun

AusACPDM Listening and Sharing session: 29th June 2022

Meet the Editor of Developmental Medicine & Child Neurology

29th June 4:30pm Australian EST

Join us in our free listening and sharing session.

Topic information: Following the successful “Ask me anything” session with Professor Bernard Dan at our AusACPDM/IAACD Conference, we have invited him back for another session where participants can ask anything about publishing. We will discuss how to get your work published, how to be a good peer-reviewer and many more hot topics in publishing.

Speakers:  Professor Bernard Dan

The session will be facilitated by: Professor Alicia Spittle

Date: 29 June - 29 June

Location: Zoom, Register for link

Register now More details
25
May

Respiratory Illness in Cerebral Palsy: It’s everybody’s business

Join us in our free listening and sharing session.

Wednesday 25th May, 2022 4.30pm Australian EST

Topic information: Respiratory illness remains the biggest contributor to deaths in young people with CP. We will present the development of the  consensus statement for the assessment, prevention and treatment of respiratory illness in children with CP. This talk will  highlight the  risk factors for respiratory illness and  everybody’s roles in achieving best lung health for children with CP.

Speakers: Dr Noula Gibson, PhD, Research Coordinator Physiotherapist, Perth Children’s Hospital

The session will be facilitated by: Dr Rachael Marpole, Advanced Respiratory Trainee, Perth Children’s Hospital and PI for the REducing ReSPiratory Admission in CP- A Feasibility  Controlled Trial  (RESP-ACT)

Date: 25 May - 25 May

Location: Zoom, please register for link

Register now More details
27
Apr

AusACPDM Listening and Sharing session: 27th April 2022

Dispatches From An Information Dessert: Framing CP As Adults

27th April 4:30pm Australian EST

Join us in our free listening and sharing session.

Topic information:  Cerebral Palsy is a complex condition to live with, made more so by the fact that it encompasses such a broad spectrum of experiences & realities. Adults living with CP become responsible (by default) for articulating and advocating for themselves within systems not built for continual experience of childhood-onset disabilities. Hannah and Amy bring together both their personal experiences and professional interests to discuss the key elements of this topic.

Speakers: Amy Hogan and Hannah Diviney

The session will be facilitated by: Petra Karlsson and Sarah McIntyre

Date: 27 April - 27 April

Location:  Zoom, please register for link

Register now More details
30
Mar

AusACPDM Listening and Sharing session

“Running sports-focussed interventions in different contexts. Sports Stars in the bush, Brazil and babies.”

Join us in our free listening and sharing session.

Wednesday 30th March 2022 4.30pm to 5.00pm Australian DST/ 3.30pm Australian EST

Topic information: 

Sports Stars is a practitioner-led, peer-group sports intervention that aims to prepare children for transition out of health-focussed interventions, and into participation in community sport. In this session, Georgina will share her experiences and learnings from adapting Sports Stars so that it can be run in different geographical and cultural contexts, including rural/remote Australia and Brazil, and in different population groups, including for children with CP, Autism or JIA, young children referred for gross motor delay, and groups with children with a variety of disabilities. This session will include practical information on the role of Physical Literacy in meaningful sports participation.

This session would be enjoyed by people with an interest in sports participation of people with disabilities including clinicians, researchers and people with disabilities and their families.

Speakers: Dr Georgina Clutterbuck

The session will be facilitated by:  Dr Megan Auld

Date: 30 March - 30 March

Location: Zoom, please register for link

Register now More details
24
Nov

AusACPDM Listening and Sharing session

“Assessment of dyskinesia in CP: then and now”

Join us in our free listening and sharing session.

Wednesday 24th November 2021, 4.30pm to 5.00pm Australian DST

Topic information: This session will provide an overview of recommended assessment practices for children and young people with cerebral palsy and dyskinesia, including measuring the impact of dyskinesia on function. We will present the newly published tool: The Dyskinetic Cerebral Palsy Functional Impact Scale (D-FIS). This session is targeted towards physiotherapists, occupational therapists and physicians but will also be of interest to other health professionals, researchers as well as people with cerebral palsy and parents of children with cerebral palsy.

Speakers: Kirsty Stewart and Adrienne Harvey

The session will be facilitated by: Adrienne Harvey

Date: 24 November - 24 November

Location: Zoom, please register for link

Register now More details
27
Oct

AusACPDM Listening and Sharing session

Supporting children and adults with disabilities in low-middle-income countries during the COVID pandemic

Join us in our free listening and sharing session.

Wednesday 27th October 2021 at 4.30pm Australian DST

Topic information: Come together to discuss the innovative strategies being used to support families of children and adults with disabilities in Bangladesh and Sri Lanka during the COVID pandemic.

Speakers:

Ms Israt Jahan (Program Manager, CSF Global) will be speaking about how the team at CSF and implementing community-based rehabilitation and research programs during the COVID pandemic.

Prof Samanmali Sumanasena (Hon Consultant Paediatrician North Colombo Teaching Hospital and University of Kelaniya) will be speaking about the impact of the COVID pandemic on health and disability services in Sri Lanka.

Mr Gopi Kitnasamy (Head of Rehabilitation Services) will be talking about the MJF Charitable Foundation’s use of the disABILITY Screening App to provide telehealth services to children and adults with disabilities.

The session will be facilitated by: Dr Hayley Smithers-Sheedy

Date: 27 October - 27 October

Location: Zoom, please register for link

Register now More details
06
Oct

6th Oct: World CP Day 24hr Listening and Sharing session

What is this 24-hour session about?

By focusing only on diagnosis, we may be missing vital information which we ordinarily think about as clinicians of any sort when we are asked to work with a child and families. We have a long tradition of thinking diagnostically and functionally (or categorically). The idea of focusing just on diagnosis or function is clearly a limitation and we believe we need to expand our thinking.

This 24-hour session provides an opportunity for health professionals working in the field of childhood disability, parents and experiential experts across the globe to come together and ask one another “How can we best benefit from combining two approaches (Functional and Diagnosis thinking)? What are we missing?” “(How) can we integrate and expand both approaches in order to cover topics like bodily functions, mental wellbeing, meaning, quality of life, participating, daily functioning, psychological, social, pedagogical and spiritual aspects?”

Contact  IAACD to join the Listening and Sharing Group email

Download a document with links to other sessions around the world here.

Register now for the AusACPDM session (registration link below)

Wednesday 6th October 2021 at 4.30pm Australian EST

Date: 6 October - 6 November

Location: Zoom, please register for links to each hour session

Register now
06
Oct

AusACPDM Listening and Sharing session

Diagnosis vs Functional Thinking

Join us in our free listening and sharing session.

Wednesday 6th October 2021 at 4.30pm Australian EST

Topic information: This session will be held on World Cerebral Palsy Day and will involve a panel of health professionals and consumers discussing ”diagnosis vs functional thinking” in how we promote excellence in clinical care and research for children and adults with cerebral palsy and developmental conditions.

Speakers: Professor Christine Imms (Occupational Therapist and Apex Chair of Neurodevelopment Disability, MCRI & Uni Melbourne)

Dr Mary-Clare Waugh (Paediatric Rehabilitation Physician, Children’s Hospital Westmead)

Dr Gordon Baike (Paediatrician, Royal Children’s Hospital)

John Carey (Physiotherapist, PhD Candidate Uni Melbourne)

The session will be facilitated by: Professor Alicia Spittle

Date: 6 October - 6 October

Location: Zoom, please register for link

Register now More details
X