Past Event

26
Jun

AusACPDM Listening and Sharing Session: June 2024

Congenital Cytomegalovirus

Join us in our free listening and sharing session.
26th June 2024, 4:30pm – 5:30pm Australian Eastern Savings time
Topic information:

Did you know that June is CMV Awareness Month? So what better time to learn about this common virus, outcomes for children born with CMV, clinical outcomes for children with congenital CMV disease and opportunities for prevention.

Most importantly of all, during this session you will hear from families with lived experience describing their journeys and what family centred care has meant for them.

Join us for this interactive AusACPDM Listening and Sharing session which will be of interest to clinicians, researchers, students and people with lived experience.

Speakers: Hayley Smithers-Sheedy, Kath Swinburn and Pam Rogers

The session will be facilitated by: Hayley Smithers-Sheedy

Date: 26 June - 26 June

Location: Zoom, register for link.

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15
May

AusACPDM Listening and Sharing session: May 2024

Cerebral Palsy Global Clinical Trials Network

Join us in our free listening and sharing session.
Wednesday 15th May 2024, 4:30pm – 5:30pm Australian Eastern Standard Time

Topic information: This interactive AusACPDM Listening and Sharing session will be about:
The establishment of the Cerebral Palsy Global Clinical Trials Network, generously funded by the Elsass Foundation and Cerebral Palsy Alliance. This session will illustrate how through innovation, global collaboration and partnerships with people with cerebral palsy (CP), we aim to overcome the limitations of regular clinical trials for CP. The Network aims to improve outcomes and quality of life for those living with CP, via faster clinical trials using innovative adaptive designs, and faster translation of new treatments into usual care. We will delve into the rationale, current CP field agreement for the Network, development stages, and provide an update on the Network’s first adaptive prototype study.
This session will be of interest to clinicians, researchers, students and people with lived experience.

Speakers: Presenters include: Adjunct Associate Professor Maria McNamara, Jenna Mitchell, Karin Lind, Professor Iona Novak

The session will be facilitated by: Kirsty Stewart

Date: 15 May - 15 May

Location: Zoom, Register for the link

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24
Apr

AusACPDM Listening and Sharing Session: April 2024

Weight No More

Join us in our free listening and sharing session.
24th April 2024, 4:30pm – 5:30pm Australian Eastern Standard Time
Topic information: This presentation provides a talk and discussion on The Healthy Kids Club. A multidisciplinary service for obesity and Type 2 Diabetes. A Trans-disciplinary model of working focusing on health education and lifestyle change.

This session will be of interest to clinicians, researchers, students and people with lived experiences.
Speakers: Stephanie Brain – Physiotherapist
The session will be facilitated by: Meredith Wynter

Date: 24 April - 24 April

Location: Zoom, register for link.

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27
Mar

AusACPDM Listening and Sharing session: March 2024

“Conveying Life, Laughter, Logistics and Leg Length” Presenting Case Studies in 2024

Join us in our free listening and sharing session.

27th March 2024, 4:30pm – 5:30pm Australian Eastern Daylight Savings time

Topic information:  This presentation provides a talk and discussion on presenting case studies respectfully, particularly focusing on the experiences of individuals with disabilities in different settings. Targeted at clinicians, academics, and allied health professionals, it explores the power of personal stories, the impact of language, and the process of building contemporary case studies. Through examples and reflections, it emphasizes the importance of conveying both success stories and challenging experiences with sensitivity and ethics.

Speakers: Amy Hogan, Sara Sheehan, Katarina Ostojic, Adrienne Harvey

The session will be facilitated by: Sarah McIntyre

Date: 27 March - 27 March

Location: Zoom, Register for the link

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27
Feb

AusACPDM Listening and Sharing session: Feb 27th 2024

Dipping your toes into research

Join us in our free listening and sharing session.

Tuesday 27th Febueray: 4.30pm (AEST), 5.30pm (AEDT) 

This interactive AusACPDM Listening and Sharing session will be about what it’s like to dip your toes into research, without immediately making the jump to a formal research degree like a PhD. We will hear from four clinicians who have all engaged in research recently via different avenues. This session will include a discussion on how to find opportunities to get involved in research, and what it’s like to be involved in research while working clinically. We will also explore the opportunities that exist after you get that first taste of research.

This session will be of interest to clinicians, students and people with lived experience who are interested in being involved in research, or researchers who would like to partner with these people.

Presenters include:  Karen Graham, Ishani Perera, Joseph Vida & Lizzy Barnes Keoghan

The session will be facilitated by:   Dr Georgina Clutterbuck

Date: 27 February - 27 February

Location: Zoom., register for the link

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15
Feb

AusACPDM Listening and Sharing session: Feb 2024

Selective Dorsal Rhizotomy: shared experiences of SDR Programs in Australia and England

Join us in our free listening and sharing session.

Thursday 15th February 2p AEDST

We are happy to announce this special event, an additional AusACPDM Listening and Sharing session in February.

This will be held via zoom, open to everyone (registration essential as numbers are limited!) OR there is limited availability to attend in person at Spacecubed North Parramatta (email Jennifer.lewis@health.nsw.gov.au for in-person attendance- RSVP 11 Feb 2024).

Topic information:

Kids Rehab, Neurosurgery and The Children’s Hospital at Westmead  (CHW) are delighted to host Dr Kristian Aquilina from Great Ormond Street Hospital, London. Dr Aquilina is an internationally renowned expert in the field of Selective Dorsal Rhizotomy (SDR) surgery for cerebral palsy. His visit to Sydney offers a unique opportunity for collaboration and the exchange of knowledge.

This session will highlight current practices in Australia and London, including knowledge translation strategies designed to enhance knowledge and foster shared decision-making among families and clinicians.

Speaker: Dr Kristian Aquilina (Great Ormond Street Hospital) and Jenny Lewis (The Children’s Hospital at Westmead)

The session will be facilitated by: Dr Simon Paget

Date: 15 February - 15 February

Location: Spacecubed North Parramatta (email Jennifer.lewis@health.nsw.gov.au to attend) Or Zoom, register for the link

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31
Jan

AusACPDM Listening and Sharing session: 31st January 2024

Growth in children with cerebral palsy: Friend or foe

Join us in our free listening and sharing session.

January 31st 2024, 4pm AEDST

This session will be of interest to clinicians, researchers, students  and people with lived experience.

Topic information: Musculoskeletal problems (MSP) in children with CP tend to progress overtime. The impact of growth on muscle contracture, the development and progression of bony deformity and joint instability may be a result of growth. In this talk Dr Abhay Khot will present MSP that develop with growth. He will discuss how considering growth can impact on timing and type of orthopaedic surgery and how growth plate surgery may improve some MSP.

We hope this session evokes some lively discussion!

Speaker: Dr Abhay Khot, Consultant Orthopaedic Surgeon

The session will be facilitated by: Pam Thomason

Date: 31 January - 31 January

Location: Zoom, Register for the link

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27
Sep

AusACPDM Listening and Sharing session: 27th September 2023

“Culture is inclusion”

September 27th 4.30pm Australian EST

Join us in our free listening and sharing session.

Speaker: Dr Scott Avery Associate Professor, First Nations Disability and Inclusion, Western Sydney University

Dr Avery is a profoundly deaf and Aboriginal scholar from the Worimi people. Dr Avery has a long-standing partnership with the First People’s Disability Network and advises on the intersection of Indigenous and disability issues in policy, including Closing the Gap and the Australian Disability Strategy. He is personally motivated by social equity through policies and services which make a difference for the most disadvantaged and vulnerable people in our communities.

Dr Avery will discuss his publication ‘Culture is Inclusion’ . It is a remarkable and compelling story of Aboriginal and Torres Strait Islander people with disability presented in a unique way that combines traditional research methods and the concept of ‘yarning’. Dr Avery’s research calls out “intersectional inequality”- interacting, multifaceted exposures to discrimination experienced by Aboriginal and Torres Strait Islander people with a disability.  Despite overwhelming disadvantage, these proud and resilient people continue to defy their experience by embracing their traditional culture of an inclusive society.

This Listening and Sharing session is not one to be missed! It will be facilitated by Dr Sarah McIntyre and Emma Stanton on behalf of  the Advocacy and Awards Committee

Date: 27 September - 27 September

Location: Zoom, register for link

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25
Oct

AusACPDM Listening and Sharing session: 25th October 2023

Getting involved with the AusACPDM: Conference scholarships, mentoring and membership

October 25th 4.30pm Australian EDST

Join us in our free listening and sharing session.

This session will be of interest to clinicians, researchers, students  and people with lived experience.

Topic information: This session will show you easy ways to get involved with the AusACPDM, including how to apply for

  • AusACPDM Membership and
  • AusACPDM Conference Scholarships

There will also be tips for international scholarship applicants and lastly you will hear all about the Conference Mentor Program

Speakers:  Shona Goldsmith, Jenny Lewis, Gaela Kilgour and Tasneem Karim

The session will be facilitated by: Hayley Smithers-Sheedy

Date: 25 October - 25 October

Location: Zoom, register for link

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