Past Event
Jul
AusACPDM Listening and Sharing session: July 2025
Research Toolkit unpacked- a guide by One Group Our Voice!!
Join us in our free listening and sharing session.
30th July 2025, 4:00pm – 5:00pm Australian Eastern Standard time
Topic information: This presentation provides a talk and discussion on:
People who use AAC are underrepresented in research and so their voices, issues and needs are not heard. One reason they are excluded from research is the confidence of researchers to meaningfully engage with AAC users. One Group Our Voice (AAC users themselves) and colleagues have developed a Toolkit containing information and resources for involving AAC users in research as participants and research partners. In this session they will orient listeners to issues in communicating with AAC users, describe accessible research and research methods, and examine the important issues of seeking fully informed consent and working with communication supporters.
Speakers: AAC users Brenton Ponza, Penny Manning, Brodie Shaw and Shirls Wong, and Jenna O’Brien
The session will be facilitated by: Shirls Wong
Date: 30 July - 30 July
Location: Zoom, Register for the link
Register now More detailsMay
AusACPDM Listening and Sharing: May 2025
The PREMTiME Study – implications for early targeted surveillance of very preterm infants
Join us in our free listening and sharing session.
28th May 2054, 4:30pm – 5:30pm Australian Eastern Savings time
Topic information: The PREMTiME study is a collaboration between the Sunshine Coast Hospital and Health Service and the University of Queensland that aims to deliver family centred, cost effective and clinically efficient follow-up services for very preterm born and very low birthweight infants. Outcomes of the first phase of the study identified new biomarkers that may help clinicians make very early and accurate predictions about outcomes in children who are born very preterm or with very low birthweight. This session is relevant for families with children impacted by preterm birth and health care professionals working in acute neonatal developmental care and neonatal neurodevelopmental follow up services.
Speaker: Dr Rebecca Caesar, PhD (Clinical Lead Paediatric Physiotherapy, Women’s and Children’s Service, Sunshine Coast Hospital and Health Service)
Date: 28 May - 28 May
Location: Zoom, register for link.
Register now More detailsApr
AusACPDM Listening and Sharing session: April 2025
The hope of unproven therapies:
Healthcare professionals’ experiences of patient & family enquiries
Join us in our free listening and sharing session.
30th April 2025, 4:00pm – 5:00pm Australian Eastern Standard Time
Topic information: Healthcare professionals are increasingly approached by consumers seeking advice on unproven online therapies. In this session we will discuss the experiences of healthcare providers, the complexities involved and explore opportunities on how to navigate and respond to these enquiries.
Speakers: Leanne Rees is a physiotherapist and post-doctoral research officer at the Murdoch Children’s Research Institute. She is investigating how healthcare professionals navigate patient’s and family’s therapeutic hopes in the online age.
The session will be facilitated by: Stacey Cleary
Date: 30 April - 30 April
Location: Zoom, Register for the link
Register now More detailsMar
AusACPDM Listening and Sharing: March 2025
Migration Health and Disability Discrimination: Where are we at?
Join us in our free listening and sharing session.
26th March 2025, 4:00pm – 5:00pm Australian Eastern Daylight Savings time
Topic information: Australia’s migration laws discriminate against people with a disability or a health issue. Hear from Welcoming Disability Policy Advisor Dr Jan Gothard about these laws. Be updated about recent changes and recommendations from the DRC currently being reviewed by the Attorney General’s Department including the discriminatory components of migration.
Speakers: Dr Jan Gothard
The session will be facilitated by: Sarah McIntyre
Date: 26 March - 26 March
Location: Zoom, register for link.
Register now More detailsMar
The Rehab for Kids 2025 Conference
The Rehab for Kids 2025 Conference to be held at the Brisbane Convention Centre is open for registration!
We invite doctors, allied health professionals, teachers and others working with children with Acquired Brain Injuries, Cerebral Palsy, Spinal Cord Injuries and related conditions, as well as those with lived experience, to join us for this fantastic learning and networking opportunity.
The Rehab for Kids conference is a national conference organised by the Queensland Paediatric Rehabilitation Service (QPRS), Queensland Children’s Hospital, and partnered with the Australasian Cerebral Palsy Clinical Trials Network (AusCP-CTN), to provide the latest information and research relevant to paediatric rehabilitation.
The QPRS ABI in children research program will be hosting ‘Concussion in Management across the lifespan: from theory to practical approaches’ on 5 March 2025.
See the program and register here: Rehab For Kids 2025 (eventsair.com)
Date: 5 March - 7 March
Location: Brisbane Convention & Exhibition Centre, QLD
Register nowNov
AusACPDM: Listening and Sharing Session November 2024
This interactive AusACPDM Listening and Sharing session will be about:
Research in low and middle income (LMIC) country settings. Growth in healthcare research capacity in LMIC settings will make important contributions to reducing healthcare challenges and disparities in LMIC countries. Locally led research has potential to propose, evaluate and translate culturally appropriate interventions and solutions, and at the same time, empower communities to articulate their needs and influence solutions. For this Listening and Sharing session, two PhD programs of work being conducted in LMICs will be presented.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Presenters include:
Ms Thilini Madushika, “Cerebral palsy in western province Sri Lanka”. PhD candidate based Sri Lanka
Mr Anderson Mughogho, “The feasibility of implementing the GMA in the NICU of a referral hospital in Malawi-caregiver and professional perspectives”. PhD candidatebased in Malawi
Professor Alicia Spittle, University of Melbourne, who is part of the supervision of both PhD candidates will share her experiences of supporting research higher education in LMIC
The session will be facilitated by: Professor Jenny Downs, Head of Child Disability, The Kids Research Institute, Australia.
Disability, The Kids Research Institute Australia.
Date: 27 November - 27 November
Location: Zoom, register for link.
Register now More detailsOct
AusACPDM Listening and Sharing session: October 2024
Co-design of a novel knowledge translation tool: Australian Selective Dorsal Rhizotomy (SDR) Decision Aid
Join us in our free listening and sharing session.
30th October 2024, 4:00pm – 5:00pm Australian Eastern Daylight Savings time
Topic information: Join us for the launch of the SDR Decision Aid. The SDR Decision Aid provides evidence-based information about SDR that is easy-to-understand, accessible and relates to our Australian experience. The purpose of the SDR Decision Aid is to start the conversation with families when discussing SDR as a treatment option for children with bilateral spastic cerebral palsy so that the right decisions can be made for right child at the right time.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Speakers: Jenny Lewis (CHW NSW), Dr Neil Wimalasundera (RCH Vic), Meredith Wynter (QCH Qld), Felicity Baker (WCH SA).
The session will be facilitated by: Dr Simon Paget (CHW NSW)
Date: 30 October - 30 October
Location: Zoom, Register for the link
Register now More detailsSep
AusACPDM Listening and Sharing: September 2024
CP Active – Activating Our Voices for Change
Join us in our free listening and sharing session.
25th September 2024, 4:30pm – 5:30pm Australian Eastern Savings time
Topic information: An update on the CP community’s advocacy platform, CPActive. CPActive is a grassroots movement driven by individuals with CP, similar disabilities, and their allies. Discover our three key pillars: advocating for change, fostering community, and creating opportunities for development. Learn about our initiatives and find out how you can be part of our community and help amplify the voice of lived experience towards inclusion.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Speakers:Aman Gopalani, Daniel Clarke, Riley Saban, Sophie Geeves and Teigan Butchers
The session will be facilitated by: Georgina Henry
Date: 25 September - 25 September
Location: Zoom, register for link.
Register now More detailsApr
2025 CP-Acheive & AusACPDM Cerebral Palsy Symposium
The 2025 CP-Achieve and AusACPDM Symposium will focus on Progress and Possibilities- celebrating 5 years of research through lived experience and planning the future, and is an event not to be missed!
The symposium will bring together the CP-Achieve team, collaborators, invited researchers, and people with lived experience to share the work that has been accomplished in the past five years and new knowledge on the advancement of lifespan outcomes for young people with cerebral palsy.
The symposium will be held over two days and explore research looking at the health, well-being and participation of adolescents and young people with cerebral palsy and the future of cerebral palsy research beyond CP-Achieve.
There will be a range of interesting and informative speakers and expert talks covering the latest research, as well as opportunities for symposium attendees to engage, contribute and network.
This will be an in-person event and there will be no live streaming or recordings available post symposium.
EARLY BIRD REGISTRATION OPENS AT 8:00AM 31 JULY 2024!
Visit the CP-Achieve website for more inforamtion
https://www.cp-achieve.org.au/about/the-cp-achieve-ausacpdm-symposium-2025/
Date: 3 April - 4 April
Location: Melbourne
Register now