Study Recruitment: ENVISAGE- ENabling VISion And Growing Expectations
What is ENVISAGE?
ENVISAGE stands for ENabling VISion And Growing Expectations. It involves five caregiver-friendly online workshops for parents/caregivers of young children new to the journey of parenting a child with a neurodisability. The workshops aim to provide early exposure to modern thinking about childhood disability. Our aim is to empower caregivers to take a strengths-based, ‘developmental’ approach to their child and family’s situation.
The overall aims of ENVISAGE are to:
- Enhance caregivers’ understanding of their own capacities, competence and capabilities to parent their child with an early onset neurodisability successfully and with confidence;
- Promote caregivers’ understanding and promote lived experience of family-centred service, strengths-based approaches and contemporary views of childhood disability; and
- Empower caregivers to be confident in decision-making regarding their child’s development and the services they access.
We are writing to ask if you could inform clients who are parents or caregivers of children with a neurodisability of our study by emailing them the “Email to Parents”. Specifically, we are wanting to engage with parents of children, 6 years and under, with an identified early-onset neurodisability. Unfortunately, we cannot accept any children who are currently going through the diagnostic process.
Who is funding the research project?
This project is funded by the The Canadian Institutes of Health Research. This project has received ethical approval from the Australian Catholic University Human Resources Ethics Committee (HREC 2019- 18H), Children’s Health Queensland Hospital and Health Service Human Research Ethics Committee (HREC/19/QCHQ/50457) and Hamilton Integrated Research Ethics Board (2019-5769-GRA) and is supported by CanChild, Centre for Disability and Development Research (CeDDR), Children’s Health Queensland, and Cerebral Palsy Support Network.
If you have any questions about the project, please do not hesitate to contact: Envisage@acu.edu.au
Dr Laura Miller, Laura.Miller@acu.edu.au
Ms Abha Balram, Abha.Balram@acu.edu.au
