Participate in Research: The Dystonia IMPACT study
The Improving Measurement and Priorities for Assessment in Clinical Trials of childhood-onset Dystonia, The Dystonia IMPACT study, seeks to understand which outcomes matter most for these individuals and their families, and how best to measure them. Your expertise and perspective will help shape future care strategies.
If you choose to participate, you’ll be asked to complete a short online survey (approximately 10–25 minutes) about:
- The outcomes you currently measure
- Which outcomes you believe are most important
- The best ways to measure these outcomes
Your participation is completely voluntary, and all responses will be kept confidential.
To learn more about the study or ask any questions, email the team at dystoniaimpact@qmul.ac.uk.
Click the link below to participate in the survey: [https://qmulbusiness.qualtrics.com/jfe/form/SV_5bDPVqRxwDMqIRw]
Thank you for considering this opportunity to contribute to meaningful research. Your insights are invaluable!
Best regards,
Dr Hortensia Gimeno On behalf of the Dystonia IMPACT research team