Participate in important research on pain measurement in cerebral palsy

3rd March, 2020

We are inviting clinicians, researchers, parents of children with cerebral palsy (CP) and young people with CP to provide their valuable perspectives on how we should be measuring pain in young people with CP.

Young people with CP frequently experience pain which can affect day to day activity levels and quality of life. However, pain is difficult to identify and measure in this population.  Our research team is conducting a series of electronic surveys using REDCap™ to work out the best way to measure pain in young people with CP. The aim of this research is to help clinician’s and researcher’s measure pain in a meaningful way for young people and their families by using the best available tools.

The first stage of this research involves a survey to gain agreement on the most meaningful domains to include when measuring pain in young people with CP. The survey will take approximately 10-15 minutes to complete. By agreeing to take part, you will also be sent 1-2 follow up surveys until a set of pain domains has been agreed upon.

By taking part in this survey you will be giving “IMPLIED CONSENT”. If you are interested in taking part in the survey, you may open the survey in your web browser by clicking on the link below.

Take the survey

Download the Information Sheet

Thank you,

Adrienne Harvey, Clare McKinnon, Simon Paget, Angie Morrow, Katarina Ostojic, Nadine Smith.