AusACPDM 2018 offers a great selection of concurrent breakfast sessions each morning.
Please note that there is an additional cost to attend concurrent breakfast sessions.
The cost is AUD 35 / NZD 40 per breakfast session and you must register your attendance via the online registration form.
Breakfast sessions will run concurrently on:
Thursday 22 March 2018
Common data elements for research in CP – Sarah McIntyre
This breakfast session will facilitate a greater understanding about CP CDEs for Australasian researchers. The presenters, who contributed to developing the CP CDEs, will discuss with participants 1) development of CP CDEs, 2) how to locate and use CP CDEs and their CRFs on the NINDS website, 3) gaps that have been identified in CDE coverage, 4) how to submit feedback, and 5) barriers and enablers of using CP CDEs in Australasian research.
Preventing chronic diseases in adults with CP – Mark Peterson
This session will highlight the need for a lifespan approach to improve screening and tailoring of interventions to preserve function and cardiometabolic health, increase longevity, and improve overall quality of life in the CP population.
Selective Doral root Rhizotomy (SDR) Home and Away: The Orthopaedic experience post SDR – Pam Thomason
This breakfast session will present the short term results of SDR on spasticity and gait and the longer term functional outcomes, including the prevalence of orthopaedic procedures. Case discussions will include children who have undergone SDR at RCH or at international centres.
Is it catchy? Viruses in the developing fetus and newborn and their role in neurodevelopment disability – Hayley Smithers-Sheedy
After attending this session participants will 1) be aware of the current evidence regarding the sequelae associated with congenital cytomegalovirus infection, congenital Zika virus and other mosquito borne viruses and perinatal human parechovirus infection 2) understand some of the diagnostic challenges in confirming these infections and 3) have an awareness of the simple preventative strategies available to reduce the risks of infection and disease
Indicators of Oropharyngeal Dysphagia and Undernutrition in Children with Cerebral Palsy – Development of a Screening Tool – Kristie Bell
This breakfast session will discuss current and emerging literature regarding the identification of oropharyngeal dysphagia and undernutrition in children and adolescents with CP. There will be a focus on data collected as part of our current validation study involving the development of a screening tool for oropharyngeal dysphagia and undernutrition in this group with presentation of our final, validated screening tool.
Friday 23 March 2018
Social skills training to make and maintain friends for adolescents/young adults with autism, cerebral palsy and acquired brain injury – Sarah McIntyre
Presenters of this breakfast session have been trained in PEERS®, developed the Australian research and have run the program twice. They will discuss with participants 1) the structure and content of the program 2) the outcomes of a young adult and adolescent group 3) lessons learned in implementing this program in an Australian context and within the NDIS framework and iv) progress from the first RCT of PEERS® for CP/ABI.
The international CP Genomics Consortium data portal – Yana Wilson
At the end of this session participants will be able to 1) demonstrate how users can capture and manage various ‘omics data in the ICPGC Data Portal, 2) show how users can capture and manage clinical and imaging data in the ICPGC Data Portal 3) showcase the ICPGC Data Portal’s ability to integrate queries across multiple datasets.
Cerebral visual impairment in infancy: from neuroplasticity to intervention – Andrea Guzzetta
Starting from the understanding of early neuroplasticity of the visual system, the presenters will discuss with participants the best tools for early detection of cerebral visual impairment and the possible therapeutic strategies to optimize visual outcome.
Intrathecal Baclofen; reflections on 5 years of Australian data collection – Lisa Copeland
Speakers will reflect on different practices with respect to patient selection, follow up and management of complications at various Australian Paediatric Institutions and how our practice can be influenced by APIRG practices. We will invite comment and question from delegates throughout the discussion.
Implementing early diagnosis of CP across Australia – Iona Novak
Researchers are working together to close the research-practice gap, aiming to enable all Australians to get access to an early diagnosis, as per the CPG recommendations. Through a national partnership between the CRE-Australasian CP Clinical Trials network, Cerebral Palsy Alliance, and the CRE in Newborn Medicine, a strategy to implement the International CPG for early diagnosis of CP has commenced in Australia and parts of Asia.
Four examples of implementation will be described, including 1)Neonatal Network model (NSW), 2) State-wide Early detection model using telehealth (QLD), 3) Early Detection clinics and early detection APP (VIC), 4) Low-Middle income country as part of a regional early intervention trial (Kolkata, India).
Saturday 24 March 2018
Health maintenance in Spina Bifida: Developing state-wide clinical practice guidelines, focus on infants and children to age 3 – Kate Rodwell
The workshop will commence with a presentation summarising up to date available evidence on key aspects of health management of spina bifida, with a focus on guidelines for the first three years of life. Panel members will discuss rationale for existing local practices and will also encourage expert opinion from attendees to seek consensus on national guidelines for infants and children with spina bifida in Australian and New Zealand. Panel members will include rehabilitation specialists and the specialist spina bifida physiotherapist from the Lady Cilento Children’s Hospital spinal disabilities clinic.
Understanding cerebral palsy in low and middle income countries (LMICs): from burden to early diagnosis and intervention – Gulam Khandaker
In this session we will discuss new evidence generated from CP registers and intervention research conducted in LMICs. Moreover, this session will highlight how work extends beyond the research studies, in particular the opportunities for community development and empowerment through education and peer support. In this interactive session, participants will have the opportunity to ask questions and discuss case studies drawn from on-going and completed research in Bangladesh, Indonesia, India, Sri Lanka, Uganda and Vietnam.
Australian and New Zealand Cerebral Palsy Strategy: How we got here, where we are now, what are the next steps? – Ingrid Honan
This workshop will provide an overview of the first Australian and New Zealand Cerebral Palsy Strategy, due to undergo community consultation in late 2017, with a final version to be made publicly available in 2018. . Participants will discuss appropriate ways of measuring progress towards achieving the goals and objectives outlined in the strategy. Feedback will also be sought around appropriate avenues for promoting and distributing the strategy, and ways in which it might be used in advocacy at an individual and policy level, to obtain additional resources and to enact societal change. Participants will be provided with a summary of the strategy and given the opportunity to provide an endorsement, if they choose to do so.
Evidence-based chronic pain assessment for children with disabilities using a novel Toolbox approach – Ashleigh Townley
This workshop will address common sources of chronic pain in children with cerebral palsy; identify and describe the impacts on function and participation; introduce chronic pain assessment tools as part of an evidence-based knowledge product, the Chronic Pain Assessment Toolbox for Children with Disabilities; and teach attendees how to apply the Toolbox to their practice using two examples from large Canadian and American rehabilitation hospitals.
Measuring levels of physical activity in children with cerebral palsy – Nichola Wilson
This breakfast session will provide participants the opportunity to reflect on their own experience of measuring physical activity levels in children, provide an evidence base for why this is important and how to improve practice. Research from a range of methods of measuring children’s physical activity levels will be discussed, including the StepWatch Activity Monitor will be used to demonstrate a method of activity monitoring.