A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements V1.0 recommendations

AusACPDM | Archived | A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements V1.0 recommendations

A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements V1.0 recommendations

23rd October, 2018

Authors: Veronica Schiariti, Eileen Fowler, Joline E Brandenburg, Eric Levey, Sarah McIntyre, Theresa Sukal-Moulton, Sharon L Ramey, Jessica Rose, Susan Sienko, Elaine Stashinko, Laura Vogtle, Robin S Feldman, James I Koenig

Discussion of the paper: A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations

Published by Developmental Medicine & Child Neurology 2018.

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Committed to advancing understanding & awareness of evidence based practice for children and adults with cerebral palsy and developmental conditions.

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7 Nov 1854348547992551791

The full schedule is now out for the 2024 IAACD Global Listening & Sharing Sessions!
Join us to listen & share stories from family members from around the world & promote a community who care for families.
All are welcome to join this free GLOBAL event!
https://iaacd.net/kh-home/listening-and-sharing-sessions/

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7 Nov 1854329280958017773

Register to join in our next FREE AusACPDM Listening and Sharing session - focused on PhD Research in low and middle income settings.

📅Wed 27th November, 4.30pm AEDST

https://us02web.zoom.us/meeting/register/tZYodO-srjMiG9N-BlqK9TZsTT9pI9AcCBLy#/registration

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1 Nov 1852186105128587316

Therapy videos for a new cpThrive app are needed!
People of all ages with CP are invited to film themselves participating in different types of therapies.

These videos will play a key role in demonstrating the range of therapy options available for people living with CP.

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1 Nov 1852186137126945082

https://cerebralpalsy.org.au/news-stories/we-need-your-therapy-videos-for-a-new-cpthrive-app/

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23 Oct 1848973142611710229

Early bird rates are still available for the @CpAchieve & AusACPDM #CerebralPalsy Symposium until the 30th November! Yippee!

To register: https://www.trybooking.com/CTMMM
Discounts are also available for AusACPDM members & people with CP (/their family members)

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