Navigating Consumer Involvement in Health and Disability Research
CP Achieve has published a new resource to share their experience of consumer involvement in research. This resources aims to help researchers be more inclusive and impactful. CP-Achieve’s written guide and short video series share real stories, lessons, and practical strategies for involving consumers – drawn from five years of experience as a Centre of Excellence in cerebral palsy research.
Whether you’re new to consumer involvement or have existing experience, this resource contains:
Insights into setting up and sustaining consumer partnerships
Tips for working with adolescents, young adults, and AAC users with disability and parents in research design and implementation
Guidance on budgeting and managing small grants for involvement
Real examples of the supports and accommodations needed to enable meaningful participation by consumers with disability
Strategies for supporting safety, wellbeing, and authentic engagement
What consumer involvement really looks like—from both researcher and consumer perspectives
Download the resource on CP-Achieve’s website: https://www.mcri.edu.au/research/strategic-collaborations/centres/centre-research-excellence-cerebral-palsy
Watch CP-Achieve’s consumer involvement videos here: https://www.youtube.com/watch?v=r9oPdil5T_c&list=PL-d7Xo_wpRKWzhl15vb_aC4w9D5ua8KLC
The resource was authored by Claire Rowland, Margaret Wallen, Carolyn Pinto, Sevastine Katsakis and Dinah Reddihough, with the involvement of:
Researchers
Jackie Ding
Dr Stacey Cleary
James Cznecz
Jacinta Pennacchia
Dr Sarah Giles
Consumers:
Gaurav Thakkar
Kylie Brown
Michelle Roger
Rohan
Freya Munzel
Shirley Wong