24 hour virtual Listening and Sharing session: World CP day 6th October 2022
Join us as we travel the globe on World CP on the 6th October 2022 for a 24 hour virtual Listening and Sharing session.
A space for health workers, parents and experiential experts to share their experiences, challenges and innovations. Join for the hour of your choice starting in Singapore with a rolling programme around the globe. Please see the table below and use QR codes to register to participate!
|Language||Local Time October 6th||London time||Title||Summary of session|
|Singapore – Singapore/Rainbow Centre and Thye Hua Kwan Moral Charities||English||9.00am||2.00am||Lessons from Singapore – Adaptation of practices for school-based services||The covid-19 pandemic has prompted unprecedented adaptations in the scene of early intervention and special education in Singapore. These changes have led to a transformation in how services can be delivered in school-based settings. Join in the conversation to uncover the lessons learnt and the innovation behind the service provision.|
|China – Paediatric committee of Chinese rehabilitation medicine association||English / Chinese||12.00pm||5.00am||Rehabilitation for all||China is a Country with large populations. There is disparity in the services for people with disability especially for children .The committee has been strived to even it out. The experience will be shared in this session|
|Australia – AusACPDM||English||4.30pm AEST||6.30am||Focus on Function: New Clinical Practice Guidelines for improving function in cerebral palsy||Clinical practice guidelines were recently published regarding current best practice evidence to support children and young people with cerebral palsy to achieve functional goals. This session will present the guidelines and reflect on how we can implement changes into our own practice to benefit the clients we work with.|
|Georgia – GACNN||Georgian||12.00pm||9.00am||Insights and Challenges in postCode-19 Era in childhood disabilities|
|Rehabilitation, Function, Activity, Insights, Participation, Goal setting, Outcome, Detection, Intervention, Assessment, Evaluation, Disability, Future, Strength, Issues, Health, Family, Child, Society, ICF, Services, Involvement, Effective, Process, Knowledge, Prognosis, Community, Challenge, Support, Covid-19, Telemedicine, Experience, Specialists, Services, Better, Build, Discussion.|
|Romania – Romanian Prader Willi Association (RPWA)– NoRo Center for rare diseases||Romanian with English subtitles.|
|12.00pm||10.00am||Insights, Innovations, Opportunities and Challenges for children with rare diseases in Romania during COVID pandemic|
|During the pandemic NoRo Center had to adapt the services for children with disabilities produced by rare diseases in order to ensure continuity of care. We have provided online consultations, therapies and therapeutic education groups. We had many challenges, but we gain new knowledge that can be used in the future.|
|Poland – Polish Association for Persons with Intellectual Disability, Polish Academy of Childhood Disability|
|Polish||11.30 am||10.30 am||Robot – assisted rehabilitation in CP||Is robotic-assisted rehabilitation helpful in gait improvement training in children with cerebral palsy or is it just only the funny tool used for attracting the exercises? It is a question frequently asked by parents, caregivers, and medical professionals dealing with CP-children therapy. The answer will be done during the planning presentation.|
|Turkey – Hacettepe University, Faculty of Physical Therapy and Rehabilitation|
|Turkish||12.30pm||10.30am||Physical Activity in Individuals with Cerebral Palsy||We will include a parent of a child with CP who founder a sport club for people with CP and a experienced physiotherapist will present|
|UK – Newcastle University||English||11.00am||11.00am||Recommendations for resetting services for disabled children||UK NIHR commissioned us to develop guidance on resetting services to disabled children. We conducted a review of international literature and interviewed families and professionals across health, social care, education and the third sector about changes in practice during COVID and their impacts. We will discuss recommendations from the project.|
|Greece – PanHellenic Association of Adapted Activities ALMA||Greek||2.00pm||12.00pm||Nothing can stop us||ALMA will discuss the challenges we faced in our work during the pandemic, the ways in which we managed the situation and our conclusions (which practices worked and which did not), as well as which of these practices will continue to be used after the end of the pandemic.|
|Germany – Kinderzentrum Maulbronn gGmbH||English||1.00pm||12.00pm||From computer vision to parental satisfaction – contributions from Germany|
|Three 5-min-pitches will address|
(1) Computer vision & machine learning in early infancy: what are pitfalls for a broad screening of CP? (2) Feeding and eating disorders from infancy to preschoolers – what are the parental views?
(3) Computer vision & home-based serious gaming at school age – do we need more activity training?
|Spain||Spanish||2.30pm||1.30pm||Ecological and systemic perspectives in pre-, peri- and postnatal care. Experiences from families and service providers.|
|The Spanish “Listening and Sharing” session will bring you a journey from different perspectives and experiences on Ecological Systems Theory. How is it being applied in the Spanish context? How can we build back a better experience from birth for the baby, families, and professionals?|
|South Africa – SA-ChilD||English||4.00pm||3.00pm||The COVID-19 pandemic brought various challenges for children and young people with disabilities and their families, including access to health and rehabilitation services. We all learnt many lessons from this time – we learnt we needed to do things differently, and we learnt about the gaps in our services. How do we take lessons about new ways of working as well as the gaps in our service and incorporate them into our service going forwards. Join our conversation as we listen to the experiences of clinicians and parents from South Africa and Zimbabwe and be inspired at how we can Build Back Better!|
|Brazil – Nossa Casa Institute||Portuguese||12.00pm||4.00pm||Build back together: aprendizados para o presente e futuro|
|Portugal – APPC e APCSM||Portuguese subtitled in English, Qn A Portuguese and English||6.00pm||6.00pm||Barometer author, mother of a young adult of CP, Therapist, Woman with CP and Bord Member of an institution||Presentation of the Covid 19 Barometer – result of surveys of people with CP and their families, during the pandemic time. Caregiver’s perspectives. Challenges for the direct intervention of professionals. Facing Covid – the view of a person with CP (Independent living) vs Institutionalization threads and rights of people with disabilities.|
|USA – Northwestern University/AACPDM||English||12pm Chicago time||6.00pm||Build Back Better: Advocacy, Research, and Treatment in Developmental Disability; Lessons Learned from the Pandemic|
|We will share lessons learned from the pandemic in the care and research of individuals with developmental disability. In this panel we will hear from a parent, a physician, a therapist, and a researcher who will examine the lessons learned in the pandemic.|